PawSteps

So you've just been diagnosed

Most people get two feelings at once, and they don't sit comfortably together.

"So I'm not lazy, or stupid, or broken."

Relief, and often a fair bit of anger about how long it took. Years of assuming it was a character problem, and it turns out there was an explanation the whole time.

"But what does this mean now, and who am I supposed to tell?"

Then panic, usually within about a day. Both are normal, and you don't have to resolve them this week.

The questions everyone has

Does this mean something's wrong with my brain?

No. Assessments are written in clinical language because they're medical documents — deficits, impairments, disorder. That's the vocabulary of the system, not a verdict on you.

What the diagnosis actually says is that your brain works differently from the majority, and that most environments are built for the majority. A lot of what's been hard is that mismatch, not a fault in you.

Nothing changed on the day you got it. You're the same person you were the week before — you just have better information now.

Who do I have to tell?

Nobody. It's your information and it's yours to keep. You're under no obligation to tell friends, extended family, a college, or an employer — the Equality Act protects you whether you disclose or not.

The one good reason to tell someone is to get something: adjustments at school, extra time in exams, headphones, a quiet room, different instructions at work. That's a decision you make per person, not once for everyone.

Useful to know: you can ask for what helps without naming anything at all. I work better with written instructions gets you the thing without a conversation about your brain.

And it's a one-way door with each person — you can always tell someone later, and you can never untell them. When in doubt, later.

How do I ask for things without sounding like I'm making excuses?

The difference is what comes after it. An excuse explains why something didn't happen and stops there. A reason explains why, and then says what would make it work.

"I didn't do it because I've got ADHD."

"I lose written instructions, so I've been missing deadlines. If they come by email I can keep track of them."

Same condition, completely different reception. The second one is doing the other person a favour — you've identified the problem and handed them the fix.

You also don't owe anyone the diagnosis to make the request legitimate. What you need is legitimate on its own.

Which bits are me and which bits are the diagnosis?

This one gets messy for a while, and it's the question people find hardest. You look at things you've always liked about yourself — how deep you go on a subject, how much you notice, the way you think — and wonder whether any of it was yours.

It's the wrong split. There's no separate you underneath with the autism or ADHD layered on top; it's the same brain doing all of it. The intensity that makes school unbearable is the intensity that makes you good at the thing you love. Same setting, different situation.

Give it a few months. Most people go through a phase of attributing everything to the diagnosis, then it settles and it just becomes one true thing about you among many.

Someone who's been exactly here

Ciera's story

Founder of Pets on the Green, and of PawSteps

Diagnosed autistic in Year 9, with ADHD, ARFID and severe anxiety alongside it. After lockdown she developed a phobia of school so severe she couldn't go back at all, and lost the best part of a year of education. There was an EHCP, a hospital stay, and a lot of therapy she couldn't open up in.

What helped was animals — not because anyone prescribed it, but because animals ask nothing of you, don't mind if you get it wrong, and don't need you to explain yourself.

She's now 19, holds eleven qualifications in animal care and a Level 3 award in animal-assisted therapy, looks after more than seventy animals in Warlingham, and runs provision that local authorities pay for. Everything on this site was built by someone who couldn't get through the school gates either.

The whole story is on the Pets on the Green site, under About Ciera.

The book

Coming from PawSteps

We're writing the book we wanted at fourteen: short chapters, no clinical language, and nobody explaining you to yourself from the outside. Details here when it's ready.

Until then, both the National Autistic Society and Ambitious about Autism publish free guides written for young people, and your local library can order in almost any book for nothing — nobody at the desk asks why you want it.

One warning if you go looking on your own: this corner of the market has filled up with cheaply produced books that exist to be sold rather than read. A real publisher on the spine, or an author who's actually autistic or ADHD themselves, does most of the filtering for you.

If you want to talk to someone