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Your Child's SEN Rights

A plain-English guide for parents in England — knowing what your child is entitled to, and how to ask for it.

Published by PawSteps — a trading name of Pets on the Green Ltd.

Registered in England & Wales, Company No. 16721467. Warlingham, Surrey.

Founder: Ciera O'Rourke.

First edition. © Pets on the Green Ltd. All rights reserved.

Important: This guide is general information to help parents in England understand their child's rights and have informed conversations with schools and local authorities. It is not legal advice and does not replace advice from a qualified professional. Laws and statutory guidance change over time — always check the current version. In a crisis, contact your GP, NHS 111, or the Samaritans on 116 123.

Featuring PawSteps and our sister company WeaveONE.

🐾 PAWSTEPS · SEN SUPPORT

Your Child's SEN Rights

A plain-English guide for parents in England — knowing what your child is entitled to, and how to ask for it.
Written & published by PawSteps · Pets on the Green Ltd

If you're reading this, you may already know how it feels to ask for help for your child and be met with delay, a shrug, or an answer that just doesn't sound right. You are not imagining it — and you are not alone.

The good news is that your child's rights are written into law. Once you know what those rights are, and which law to point to, those difficult conversations become a lot easier to have. That's what this guide is for: clear answers to the questions parents ask most, each one backed by the specific law or statutory guidance behind it.

Work through it in whatever order helps you. Every chapter is short, practical, and written to be read when you're tired and stretched — because we know that's often when you need it.

You know your child best. Stay strong, and keep asking. 🐾 — PawSteps

🧵 FROM OUR SISTER COMPANY

Pathway by WeaveONE

The EHCP companion for parents — it walks you through your application in plain English (in 15 languages), so your case is taken seriously.

Free to start. It's an independent tool that helps you make your own application to the council — it doesn't replace the official process. weaveone.co.uk/pathway

Chapters

1SEN provisionDiagnoses, your child's right to support, the assess–plan–do–review cycle, SENCos, adjustments, medical needs, the Equality Act and more (16 questions). 2EHC needs assessmentsWhat an assessment is, who can request one, the low legal test, the 6-week and 20-week timescales, and what to do if you're refused. 3EHC PlansThe A–K sections, why Section F is legally binding, how a school is named, and how plans are reviewed. 5Choosing & naming a schoolYour right to request a school, mainstream and special placements, and why "the school is full" is rarely the whole story. 4Disagreements & appealsMediation, the SEND Tribunal, complaint routes, deadlines, and how to make a strong case. 6Everyday support strategiesPractical ideas for home, school, home education, work, wellbeing, therapy and clubs. 7Spotting the signs & getting supportWhat SEN can look like by age, and a step-by-step route to support — with or without a diagnosis. 8Funding, grants & local supportDLA, PIP, DSA, Access to Work, grants, personal budgets, and local networks. 9EOTASEducation Otherwise Than At School — a council-funded package when a school building isn't right. 10Therapies in an EHCPHow therapies are funded, the support tiers, wording Section F, and animal-assisted therapy. 11Understanding neurodiversityThe vocabulary, the conditions, PDA, masking, burnout, the 8 senses, and the everyday ND toolkit. 12Meltdowns & emotional regulationWhat a meltdown is, what helps in the moment and after, triggers, after-school collapse, and looking after yourself. 13For you: looking after the parent or carerIt's not your fault, it's okay to grieve, protecting yourself from burnout, and real hope for the future. 14Everyday challenges: school refusal, eating & sleepGentle, practical ways through emotionally-based school avoidance, sensory food refusal, and sleep difficulties. 15Talking about the diagnosisHow to explain it warmly to your child, their siblings, and extended family. 16Jargon buster & ready-to-send templatesPlain-English meanings for the acronyms, plus copy-paste emails for school and the council. 17Exclusions & being sent homeSuspensions, unlawful "informal" exclusions, disability discrimination, and how to challenge it.
⚠️ Please note: This guide is general information to help parents understand their child's rights in England and have informed conversations with schools and local authorities. It is not legal advice and does not replace advice from a qualified professional. Laws and guidance are updated from time to time, so always check the current version. © PawSteps · Pets on the Green Ltd.
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Chapter 1 — SEN Provision

A word from PawSteps

In England there are well over 1.6 million children recorded as having special educational needs (SEN), and more than 430,000 children and young people with an Education, Health and Care Plan (EHCP). The real number of children who would benefit from support is almost certainly higher — many parents tell us their child has never been added to the SEN register at all.

Every child with SEN is entitled — both morally and legally — to the support they need to access a suitable education, to flourish and to reach their potential. Yet so many families tell us that getting that support feels like a constant, exhausting battle. Parents describe asking for assessments or provision and being met with delay, resistance or what feels like a lack of interest. They tell us they feel unheard, disbelieved, blamed, or very much alone.

We also hear, far too often, that parents are given information that simply isn't true. Statements such as "teachers don't have time to adjust their lessons", "a child has to be years behind before anything can happen", "you must name a mainstream school in an EHCP", or "if your child is too ill to attend, no one has to provide any education" are not correct. Your child's rights are written into law.

This hub exists to help you secure the provision your child is entitled to. For each common question, you'll find a clear answer alongside the specific laws and statutory guidance that back it up, so you can point to them with confidence. Use it in whatever way helps you and your child most.

You know your child best. Stay strong — and keep asking. 🐾
— The PawSteps team

⚠️ Important: This is general information to help you understand your child's rights and have informed conversations with your school or local authority. It is not legal advice and does not replace advice from a qualified professional. It focuses on England; other UK nations have their own rules. For personalised support, PawSteps is here to help.

Abbreviations used in this guide

ShortFull document or legislation
SCOPThe SEND Code of Practice 2015
CFAThe Children and Families Act 2014
UNCRPDThe United Nations Convention on the Rights of Persons with Disabilities
UNCRCThe United Nations Convention on the Rights of the Child
TSThe Teachers' Standards 2011
EAGEEnsuring a good education for children who cannot attend school because of health needs (2013)
SCWMCSupporting pupils at school with medical conditions (2015)
WTISAWorking together to improve school attendance (2024)
EAThe Equality Act 2010
EAASThe Equality Act 2010 and Schools (2014)

Chapter 1 — SEN provision: your questions answered

1Does my child need a diagnosis to be considered as having SEN, or to be on the SEN register?

No.

Parents often tell us they've been informed that a child must have a formal diagnosis — or be a set number of years "behind" — before they can be recognised as having SEN. That isn't what the law says. SEN is defined by whether a child needs special educational provision, not by a label or a gap measured in years.

The law — CFA, Section 20A child or young person has special educational needs if they have a learning difficulty or disability that calls for special educational provision to be made for them. A child of compulsory school age (or a young person) has a learning difficulty or disability if they have significantly greater difficulty in learning than most others of the same age, or a disability that prevents or hinders them from using the facilities generally provided for others of the same age in mainstream settings. (A child is not regarded as having a learning difficulty solely because the language they are taught in differs from the language spoken at home.)

In short: a diagnosis can be helpful, but it is not a legal requirement for a child to be recognised as having SEN or to receive support.

2Does my child have a right to SEN provision?

Yes.

We sometimes hear that schools have said there is "little they can do", that they "only support academic needs", or that other children are "struggling more". Responses like these sit at odds with schools' legal duties. Both schools and local authorities have clear obligations towards children with SEN.

The law — SCOP, p.25High-quality teaching that is differentiated and personalised will meet the individual needs of the majority of children. Some children need provision that is additional to or different from this — that is special educational provision under Section 21 of the CFA. Schools must use their best endeavours to make sure such provision is made for those who need it.
The law — SCOP, p.92All children and young people are entitled to an appropriate education — one suited to their needs that promotes high standards and the fulfilment of potential, enabling them to achieve their best, become confident individuals living fulfilling lives, and make a successful transition into adulthood. Every school is required to identify and address the SEN of the pupils it supports.
The law — CFA, Section 66(2)If a registered pupil or student has special educational needs, the appropriate authority must use its best endeavours to secure that the special educational provision called for by those needs is made.

It is also worth looking at Article 3 of the UNCRC and Articles 7 and 24 of the UNCRPD.

3Do schools have to follow a process to identify SEN and a child's needs?

Yes — the "assess, plan, do, review" cycle.

For provision to be suitable and effective, needs should be identified early and support should be planned, delivered and then honestly evaluated. Repeating the same intervention for months or years with little progress helps no one — support should change in response to how your child is actually doing.

Where a child is identified as having SEN, schools should put SEN Support in place: a four-part cycle that is personalised, specific and regularly revisited (SCOP, pp.100–102).

  • Assess — clearly identify the child's needs, through assessment, observation, conversations and, where needed, referrals to and reports from specialists.
  • Plan — agree the support, expected impact and a review date, involving the parent, teacher, SENCo and (where appropriate) the child. Communicate the plan clearly to parents.
  • Do — put the plan into action. The class teacher keeps responsibility for the pupil's planning, progress and attainment.
  • Review — evaluate the impact against the agreed date, share findings with parents, and feed this back into the next round of assessing and planning.
The law — SCOP, p.94All schools should have a clear approach to identifying and responding to SEN. Identifying need at the earliest point, and then making effective provision, improves long-term outcomes for the child.
4I've paid for private assessments — I've been told they "don't count". Is that true?

If the assessment was done properly, it counts.

If an assessment has been carried out by someone with the necessary qualifications, using the correct procedures and (where relevant) belonging to the appropriate professional bodies, then it is valid evidence. The law does not say who an assessor has to be employed by. It's worth remembering that many schools and local authorities also commission independent assessors themselves.

If you're told a private assessment doesn't count, you could:

  1. Ask the person refusing it to put their decision and reasoning in writing (a "position statement") to you and to the professional who carried out the assessment.
  2. Share that statement with the professional who did the assessment and explain what you've been told.
  3. Ask that professional to respond in writing, confirming the validity of their work.

As always, do your research on any professional you choose to assess your child.

The law — SCOP, pp.102–103Where a pupil continues to make less than expected progress despite evidence-based support matched to their needs, the school should consider involving specialists. Where assessment indicates that support from specialist services is required, children should receive it as quickly as possible.
5Does a school need to have a SENCo?

Yes — mainstream schools must have one.

A SENCo (Special Educational Needs Co-ordinator) is a key point of contact for parents — someone to listen, advise, plan and help map a way forward. We hear from families who are told the SENCo is "never available", that the school "doesn't have one", or that there's "no point" talking to them. Some parents of secondary-age children have never met the SENCo at all. That isn't acceptable. Schools can share a SENCo, but having one is a legal requirement, and the school should organise itself so the SENCo has time to do the role properly.

The law — SCOP, p.108The SENCo must be a qualified teacher working at the school. Governing bodies of maintained mainstream schools and proprietors of mainstream academies must ensure there is a qualified teacher designated as SENCo. The school should ensure the SENCo has sufficient time and administrative support to carry out the role effectively.
The law — CFA, Section 67(2)The appropriate authority must designate a member of staff (the "SEN co-ordinator") as having responsibility for co-ordinating provision for pupils with special educational needs.

Tip: if you can't reach the SENCo, put your request for a meeting in an email so you have a record. If there's no proper response, email the head teacher next, then ask for the Chair of Governors and the SEN governor, or contact your local authority's SEN department.

6What does (or should) a SENCo do?

Broadly, the SENCo makes sure children with any kind of SEN can access and enjoy the curriculum and school life, and that their needs are met so they can reach their potential. In practice this means co-ordinating and monitoring support, working closely with pupils and parents, engaging with outside professionals, and keeping track of provision and progress.

The law — SCOP, p.108The SENCo has day-to-day responsibility for the operation of SEN policy and the co-ordination of support for individual pupils with SEN, including those with EHC plans. The SENCo provides professional guidance to colleagues and works closely with staff, parents and other agencies, and should be aware of the provision in the Local Offer.
7The SENCo said "this year doesn't matter — it's all repeated next year." Is that OK?

No — this is not acceptable.

Every child is entitled by law to an appropriate education, and identifying and meeting needs early really matters. No child should be expected to sit through a year while their education passes them by — the impact on learning, and on emotional and mental wellbeing, can be significant and long-lasting.

The law — SCOP, p.94The benefits of early identification are widely recognised: identifying need at the earliest point and then making effective provision improves long-term outcomes for the child or young person.
The law — CFA, Section 66(2)The appropriate authority must use its best endeavours to secure that the special educational provision called for by a pupil's needs is made.
8Is it reasonable for lessons to be adjusted to my child's needs?

Yes.

Some parents are told a teacher "doesn't have time" to adapt lessons, or lacks the strategies to teach their child. Adapting teaching to meet pupils' needs is a core professional expectation, not an optional extra.

The law — SCOP, p.99Teachers are responsible and accountable for the progress and development of the pupils in their class, including where pupils access support from teaching assistants or specialist staff. High-quality teaching, differentiated for individual pupils, is the first step in responding to pupils who have or may have SEN.
The law — Teachers' Standards, pp.11–12A teacher must adapt teaching to respond to the strengths and needs of all pupils; know when and how to differentiate appropriately; understand how a range of factors can inhibit learning and how to overcome these; and have a clear understanding of the needs of all pupils, including those with SEN and disabilities.
9What if the school refuses to put things in place for my child?

If you believe your child has SEN and needs support, a calm, well-documented approach works best:

  1. Ask for the reasons in writing. Email the SENCo asking why additional support isn't being put in place, and request a reply within, say, five school days. This gives you a record.
  2. Request a meeting with the SENCo (and perhaps the class teacher) in the same email.
  3. Prepare. Write a list of any diagnoses, your child's areas of difficulty, your key concerns, and the support you want and why.
  4. At the meeting, work calmly through your list. For any support offered, ask who will deliver it, how often, how impact will be monitored and by whom, how it will be recorded and shared, and set a review date (perhaps 4–6 weeks). Ask for a copy of any minutes.
  5. If still refused, put your concerns to the head teacher and ask them to ensure appropriate provision is made. You can use the school's formal complaints procedure if needed.

Going further, if needed, you could contact your local authority (and its complaints procedure), your local MP, Ofsted, or the Department for Education. In some cases you may also have grounds to appeal to the SEND First-tier Tribunal on the basis of disability discrimination.

10What is the Local Offer?

Every local authority must publish a Local Offer — this isn't optional. It brings together, in one place, information about the services expected to be available to support children with SEN and/or a disability in the area. Many families don't realise that the local authority also has a duty to involve children and parents in planning, publishing and reviewing it.

The law — SCOP, p.59Local authorities must publish a Local Offer setting out, in one place, information about provision they expect to be available across education, health and social care for children and young people in their area who have SEN or are disabled — including those without an EHC plan.
The law — CFA, Section 30A local authority in England must publish information about the provision it expects to be available, both within and outside its area, for children and young people who have special educational needs or a disability.
11Is my child entitled to an education if they are off sick?

Yes.

When a child is too unwell to attend school, they should still be able to access suitable education. Sometimes schools and local authorities each say it's the other's responsibility — putting your requests in email helps you prove what was asked and when.

The law — EAGE, pp.6–7Children unable to attend school because of health needs should be able to access suitable, flexible education appropriate to their needs. Local authorities are responsible for arranging suitable full-time education for children of compulsory school age who would not otherwise receive it because of illness — whether or not the child is on a school roll, and whatever type of school they attend. Where full-time education isn't in the child's best interests for health reasons, part-time education should be arranged in their best interests. Provision should still aim for good attainment, particularly in English, maths and science.
The law — EAGE, p.5Local authorities should not withhold or reduce provision because of cost (meeting the child's needs and providing a good education must be the deciding factors), nor operate rigid lists of conditions or inflexible policies that leave children without suitable education.
12My child has SEN — should she have an IEP?

Children with SEN should have provision put in place, but the law doesn't fix the format in which it's written down. Schools use different names — Individual Education Plans (IEPs), Personal Support Plans, One Page Profiles, One Plans, Pupil Passports and others. What matters is that the support is agreed, recorded and shared with you.

The law — SCOP, p.101Where a pupil is given SEN support, the parents must be formally notified. The teacher and SENCo should agree, with the parent and pupil, the adjustments, interventions and support, the expected impact and a clear review date. Parents should be fully aware of the planned support and, where appropriate, plans should seek parental involvement to reinforce progress at home.
The law — CFA, Section 68(2)The appropriate authority must inform the child's parent (or the young person) that special educational provision is being made.

So you are fully entitled to ask for details of all the support being put in place, the review dates, and how you can support the plan at home.

13My child has medical needs — does the school have to put a healthcare plan in place?

Schools have a legal duty to support pupils with medical conditions.

Comments like "we don't have to use healthcare plans anymore" or "we only do them as a favour" conflict with the law. There should be a clear process for what happens once medical needs are known, who is responsible, and how staff are trained.

The law — CFA, Section 100(1)The appropriate authority for a school must make arrangements for supporting pupils at the school with medical conditions.
The law — SCWMC, pp.4, 7, 12, 17Pupils with medical conditions should be properly supported so they have full access to education, including trips and PE. The governing body must ensure arrangements are in place so these children can enjoy the same opportunities as any other child, that the policy clearly sets out everyone's roles, and that any staff providing support have received suitable training.
The law — SCOP, p.94The CFA places a duty on maintained schools and academies to support pupils with medical conditions. Where children also have SEN, provision should be planned and delivered in a co-ordinated way with the healthcare plan.
14Can my child be placed on a reduced timetable for several months?

Only as a temporary, agreed, time-limited measure — not a long-term solution.

For some children a part-time timetable can genuinely help — a smaller amount of time where they can succeed, build confidence and ease anxiety. But it must be progressive, agreed with parents, and time-limited. It should never be used to manage behaviour, and it isn't a long-term fix.

The law — WTISA, p.25All pupils of compulsory school age are entitled to full-time education suitable to their age, aptitude and any SEN. Only in very exceptional circumstances, where it is in the pupil's best interests, might a temporary part-time timetable be used to meet individual needs — for example where a medical condition prevents full-time attendance. A part-time timetable should not be used to manage behaviour.
The law — WTISA (continued)A part-time timetable should have the agreement of both school and parent, a clear aim as part of the pupil's wider support or reintegration plan, regular review dates involving the pupil and parents, and a proposed end date after which full-time education is expected — extendable only through review, and only in limited cases (such as a long-term health condition) for a prolonged period.
15Can I tell Ofsted my views about the provision my child receives?

Yes — at any time.

You don't have to wait until a school is being inspected to share your views with Ofsted, though you should raise your concerns with the school first through its complaints procedure. See the Ofsted website for how to do this.

16Is my child protected under the Equality Act 2010?

If your child meets the Act's definition of disability, they are very likely protected — including for things like lessons, general provision, and school trips.

The law — EA, Section 6 (what counts as a disability)A person has a disability if they have a physical or mental impairment, and the impairment has a substantial and long-term adverse effect on their ability to carry out normal day-to-day activities.

What protection means. It is unlawful for a school to discriminate against or victimise a pupil: in how it provides education; in how it gives access to a benefit, facility or service; by not providing education or access; or by subjecting the pupil to any other detriment. This covers everything the school provides — including extracurricular and leisure activities, after-school and homework clubs, sports and off-site trips.

The law — EAAS, p.26 (reasonable adjustments)Where something a school does places a disabled pupil at a disadvantage compared with other pupils, the school must take reasonable steps to avoid that disadvantage. Schools are expected to provide an auxiliary aid or service for a disabled pupil where it is reasonable and would alleviate a substantial disadvantage.
The law — SCOP, p.93All schools have duties under the Equality Act 2010 towards disabled children and young people. They must make reasonable adjustments, including the provision of auxiliary aids and services, to prevent them being put at a substantial disadvantage.

Positive action. Some parents are told it would be "unfair" to adjust an event or process for a disabled child. In fact, positive action makes it lawful to treat a disabled child more favourably where this helps put them on a more level playing field with children who are not disabled.

📌 This is Chapter 1 of a larger guide. It covers SEN provision. Further chapters — for example on EHC needs assessments, EHCPs, school placement and the Tribunal — can be added in the same PawSteps style. The information here reflects the law and statutory guidance as summarised for parents; always check the current version of each document, as guidance is updated from time to time.
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Chapter 2 — EHC Needs Assessments

If SEN Support in school (Chapter 1) isn't enough to meet your child's needs, the next step can be to ask the local authority for an Education, Health and Care (EHC) needs assessment. This chapter explains how that works and how to keep it on track.

⚠️ General information for parents, not legal advice. It reflects the law and statutory guidance for England and may be updated over time — always check the current version.
🧵 Tip: a tool like Pathway by WeaveONE can walk you through the assessment request in plain English, draft the letter citing the right law, and track the 6-week and 20-week deadlines for you. Free to start — weaveone.co.uk/pathway
1What is an EHC needs assessment?

It's a detailed assessment carried out by the local authority (LA) to work out a child or young person's education, health and care needs, and whether those needs call for support through an EHC Plan. The LA gathers advice from a range of people — including you — and considers it all together.

The law — CFA, Section 36Where a child or young person may have special educational needs and may need provision to be made through an EHC plan, the local authority must carry out an EHC needs assessment.
2Who can ask for one?
  • A child's parent or carer.
  • A young person aged 16–25 themselves.
  • A school, college or setting the child attends.
  • Anyone else can bring a child to the LA's attention (for example a health or early-years professional), and the LA can also decide to assess on its own.

Tip: put your request in writing (email is ideal) so you have a dated record. Include your child's difficulties, any diagnoses or reports, and why you think school-based SEN Support isn't meeting their needs.

3What is the legal test for getting an assessment?

The threshold is deliberately low.

The LA does not need to be certain your child needs an EHC Plan to agree to assess. It only has to consider that the child may have SEN and may need provision through a plan. Your child does not have to be a set number of years "behind", and there is no rule that they must have tried a fixed number of interventions first.

The law — CFA, Section 36(8)The local authority must secure an EHC needs assessment if, after having regard to any views expressed and evidence submitted, it is of the opinion that the child or young person may have special educational needs, and it may be necessary for special educational provision to be made through an EHC plan.
4How long should it take?

A decision to assess within 6 weeks; the whole process within 20 weeks.

  • By week 6The LA must tell you whether or not it will carry out an assessment.
  • Weeks 6–12If it agrees, the LA gathers advice from education, health and care professionals — and from you.
  • By week 16The LA decides whether it will issue an EHC Plan, and tells you either way.
  • Weeks 16–20If a plan is agreed, you receive a draft. You have at least 15 days to comment and to ask for a particular school.
  • By week 20The LA issues the final EHC Plan (where one is agreed).

These timescales are set in law. If they slip without good reason, it's reasonable to chase in writing and, if needed, to complain.

5What if the LA refuses to assess?

A refusal is not the end of the road. When the LA declines to assess (or, later, declines to issue a plan), it must tell you about your right to appeal and about mediation.

  • You can appeal to the SEND First-tier Tribunal — see Chapter 4.
  • You generally have two months from the decision letter (or one month from a mediation certificate, whichever is later) to lodge an appeal.
  • Many refusals are overturned on appeal, so don't be discouraged — gather your evidence and get support. PawSteps is here to help.
6What evidence helps?

Strong requests usually include a clear picture of need and of what's already been tried:

  • Any diagnoses and professional reports (including private assessments — see Chapter 1, Q4).
  • The school's SEN Support records: what's been put in place, for how long, and the impact.
  • Attainment and progress data, and examples of your child's difficulties day to day.
  • Your own account, and your child's views where possible.
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Chapter 3 — EHC Plans

An EHC Plan is a legal document describing a child or young person's needs, the outcomes they're working towards, and the support the local authority must put in place. Understanding how it's built helps you make sure it actually says what your child needs.

⚠️ General information for parents, not legal advice. Reflects the law and statutory guidance for England; check the current version. For personalised support, PawSteps is here to help.
1What's inside an EHC Plan?

Every plan is set out in the same lettered sections (A–K), so you always know where to look:

  • AThe views, interests and aspirations of your child and you.
  • BYour child's special educational needs.
  • CHealth needs related to their SEN or disability.
  • DSocial care needs related to their SEN or disability.
  • EThe outcomes your child is working towards.
  • FThe special educational provision — the actual support. This is the part the LA has a firm legal duty to deliver.
  • GHealth provision.
  • HSocial care provision.
  • IThe placement — the name/type of school or setting.
  • JDetails of any personal budget.
  • KThe advice and information gathered (the appendices).
2Why does Section F matter so much?

Section F is the support your child must actually receive.

Good provision in Section F should be specific and quantified — how much, how often, and by whom (for example "X hours per week of Y, delivered by a qualified Z"). Vague wording like "access to" or "opportunities for" is hard to hold anyone to. The reason it matters is that the LA has an absolute legal duty to secure the provision in Section F.

The law — CFA, Section 42Where an EHC plan is maintained for a child or young person, the local authority must secure the special educational provision specified in the plan. (Where health provision is specified, the responsible health commissioner must arrange it.)
3Can I ask for a particular school?

Yes — you have the right to request one.

When a plan is being drafted, you can ask for a specific school or setting — mainstream or special, maintained, academy or certain others. The LA must name your preferred school unless a limited set of exceptions applies.

The law — CFA, Section 39The local authority must name the parent's or young person's preferred school or college in the EHC plan unless it would be unsuitable for the child's age, ability, aptitude or SEN, or attendance would be incompatible with the efficient education of others or the efficient use of resources.

You can also ask for a mainstream place; a child with an EHC Plan must be educated in a mainstream setting unless that is against your wishes or incompatible with the efficient education of others (and reasonable steps can't prevent that).

4How often is a plan reviewed?

An EHC Plan must be reviewed at least every 12 months (an "annual review"). For children under five, the guidance suggests reviewing more often — around every six months — so support keeps pace with rapid change.

An annual review looks at whether the outcomes and provision are still right, gathers everyone's views (including yours and your child's), and can lead to the plan being kept as-is, amended, or ceased. If the plan is amended or the LA proposes to cease it, you have the right to appeal (see Chapter 4).

The law — CFA, Section 44A local authority must review an EHC plan it maintains at least every 12 months.
5Do schools have to deliver what the plan says?

Yes — the provision in Section F is not optional.

Because the LA must secure the provision in Section F (Section 42), that support should be in place and delivered as written. If it isn't happening, keep a record, raise it in writing with the SENCo and head teacher, and escalate to the LA. Persistent failure to deliver can be challenged — Chapter 4 sets out the routes, including complaints and, in some cases, the courts.

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Chapter 4 — Disagreements & Appeals

Disagreeing with a decision doesn't make you difficult — the system builds in ways to challenge decisions precisely because they aren't always right first time. Keep everything in writing, stay calm and factual, and get free advice early.

⚠️ General information for parents, not legal advice. Reflects the law and statutory guidance for England; deadlines and processes can change, so check the current version and seek advice on your own situation.
🧵 Our sister company can help: Pathway by WeaveONE supports parents through appeals — score the LA's draft plan 1–10, rewrite vague provisions into specific, enforceable wording, track deadlines, and prepare a tribunal bundle, with your child's details kept private. weaveone.co.uk/pathway
1What is mediation?

Mediation is a voluntary, informal meeting (often by phone or video) with an independent mediator, to try to resolve a disagreement with the LA without going to Tribunal. It's free to you.

Before appealing most EHC decisions, you must contact an independent mediation adviser to discuss whether mediation might help. You don't have to go ahead with mediation — but you do need a mediation certificate to register your appeal (except where your appeal is only about the school named, or that no school is named, in which case a certificate isn't required).

2What can I appeal to the SEND Tribunal?

The First-tier Tribunal (SEND) is independent of the LA and hears appeals about EHC decisions, including:

  • A refusal to carry out an EHC needs assessment (or re-assessment).
  • A refusal to issue an EHC Plan after assessment.
  • The content of a plan — Section B (needs), Section F (provision) and Section I (placement).
  • A decision to cease (stop) maintaining a plan.

You usually have two months from the LA's decision letter, or one month from the date of the mediation certificate, whichever is later. The Tribunal can also make non-binding recommendations about health and social care in some cases.

The law — CFA, Section 51A child's parent or young person may appeal to the First-tier Tribunal against specified EHC decisions, including a refusal to assess, a refusal to make a plan, the description of SEN and the special educational provision, the school named, and a decision to cease to maintain a plan.
3How do I make a good appeal or complaint?
  1. Keep records. Save every letter and email, and put requests and concerns in writing so there's a clear trail.
  2. Be specific. Say what decision you disagree with, why, and what you want instead — backed by reports and evidence.
  3. Get support early. PawSteps can help you understand the deadlines and prepare your case.
  4. Mind the deadlines. Appeals are time-limited — diarise the date on your decision letter.
  5. Stay calm and factual. Panels and mediators respond best to clear, evidence-based points.
4What if it's about how I've been treated, not an EHC decision?

Different problems have different routes:

  • A school's actions or provision — use the school's complaints procedure, then the governing body.
  • How the LA handled things — use the LA's complaints procedure, then the Local Government & Social Care Ombudsman.
  • Disability discrimination by a school — a claim can be made to the SEND Tribunal (generally within six months).
  • Wider concerns — you can raise matters with Ofsted, the Department for Education, or your MP.
5Where can I get more help?

You don't have to do this alone. PawSteps is here to help you understand your rights, prepare for meetings, and take the right next step at the right time — whether that's a letter, a request, or getting ready for an appeal.

Reaching out early often makes the whole process calmer and clearer. Explore the rest of this guide, and get in touch with PawSteps whenever you need a hand.

6What exactly is the SEND Tribunal — and do parents win?

The First-tier Tribunal (SEND) is an independent national court, completely separate from your local authority. It doesn't split the difference or negotiate — it reviews the evidence and decides what the law requires, effectively stepping into the LA's shoes.

It can feel intimidating, but the framework is built around your child's needs. According to published tribunal statistics, the great majority of appeals decided at a hearing go in the parent's favour — so a refusal really isn't the end of the road. If you appeal an educational section (B, F or I), you can also ask the Tribunal to make recommendations on the health (C & G) and social care (D & H) parts.

7"Gatekeeping" — unlawful reasons to watch for

Under budget pressure, LAs sometimes give reasons that simply aren't lawful. Common ones to challenge:

  • "They're not far enough behind" or "their grades are too high" — there's no such legal test.
  • "The school hasn't spent £6,000 of its own budget yet" — not a lawful reason to refuse to assess.
  • "We won't assess without a diagnosis" — a diagnosis isn't required (see Chapter 1).

The only legal test for an assessment is whether the child may have SEN and may need provision through a plan. If you're refused on one of these grounds, appeal — most such refusals are overturned.

8When the LA doesn't deliver — or runs late

Two very common problems have specific remedies:

  • Section F not delivered (the TA hours or therapy aren't happening): the LA remains legally responsible for securing it, even if the school says it's short-staffed. Keep a record and escalate.
  • Unlawful delay past the 6-week or 20-week deadlines: chase in writing, then use the routes below.

Your remedies include:

  • A "working document": during a content appeal you can ask for a shared, tracked version of the plan that you and the LA edit back and forth — this often settles the dispute before the hearing.
  • Judicial Review: a High Court route to force an LA to meet a clear legal duty (such as missed statutory deadlines or failure to deliver Section F).
  • The Local Government & Social Care Ombudsman (LGSCO): for delays, poor communication or maladministration — it can't rewrite a plan, but it can order the LA to pay compensation for missed education or distress.
🧵 Pathway by WeaveONE (our sister company) can generate chase-up and complaint letters, score a draft plan, and rewrite vague provisions into enforceable wording — with your child's details kept private. weaveone.co.uk/pathway
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Chapter 5 — Choosing & Naming a School

When a child has an EHC Plan, the school or setting is written into Section I. This chapter explains how you get a say in which school that is — and how to push back on some of the things parents are wrongly told.

⚠️ General information for parents, not legal advice. Reflects the law and statutory guidance for England; check the current version. For personalised support, PawSteps is here to help.
1Can I ask for a specific school?

Yes — you have a legal right to request one.

Once the local authority (LA) issues a draft EHC Plan, you have at least 15 days to comment and to ask for a particular school or setting. You can request a mainstream or special school, and certain types of college. The LA must then consult the school you've named before finalising the plan.

The law — CFA, Section 38When the local authority sends a draft EHC plan, the parent or young person has the right to request that a particular school or institution is named, and to make representations about the content.
2Does the LA have to name my choice?

The LA must name your preferred school unless one of a small number of legal exceptions applies. It can't simply refuse because it would prefer somewhere else.

The law — CFA, Section 39The local authority must name the requested school in the EHC plan unless: (a) it would be unsuitable for the child's age, ability, aptitude or SEN; or (b) attendance would be incompatible with the efficient education of others, or the efficient use of resources.

If the LA relies on one of these exceptions, it should explain clearly why — and you can challenge that reasoning (see Chapter 4).

3Can I insist on a mainstream school?

There is a strong right to mainstream education.

A child or young person with an EHC Plan must be educated in a mainstream setting unless that goes against your wishes, or is incompatible with the efficient education of others — and even then only where there are no reasonable steps the school and LA could take to prevent that incompatibility.

The law — CFA, Section 33Children and young people with EHC plans must be educated in mainstream settings unless this is against the wishes of the parent or young person, or is incompatible with the provision of efficient education for others.
4Can I ask for a special (specialist) school?

Yes. If you believe a special school is right for your child, you can request one at the draft stage, and the same Section 39 tests apply. A common myth is that a child "can't go to a specialist school because they have a mainstream plan" — the plan's contents can be changed, and placement is decided against the legal tests, not by a label already on the draft. If a special school is what your child needs, make the case with evidence (reports, the level of support required, why mainstream can't meet the need).

5The school said it's "full" or has "no spaces". Is that a valid reason?

Not on its own.

Every child is entitled to a suitable education, and simply saying a school is "full" or "has no spaces" is not, by itself, a lawful reason to leave a child without a place or provision. The LA has to work to the legal tests in Section 39 — and importantly, once a maintained school or academy is named in an EHC Plan, that school has a legal duty to admit the child, even if it is otherwise full.

The law — CFA, Section 43Where a school or other institution is named in an EHC plan, the governing body (or proprietor) must admit the child or young person.

So "we're full" and "there aren't enough spaces" are not the end of the conversation. Ask for the decision and reasoning in writing, and get advice before accepting it.

6What if the LA names a school I don't agree with?

The school placement is Section I of the plan, and it is one of the parts you can appeal. If the final plan names a school you don't agree with — or refuses your preferred school — you can appeal Section I to the SEND First-tier Tribunal (see Chapter 4). As always: keep everything in writing, gather your evidence, and mind the two-month deadline.

  • Ask the LA to put its reasons in writing.
  • Line up evidence for why your preferred school is suitable and can meet need.
  • Consider mediation, then appeal Section I if needed.
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Chapter 6 — Everyday Support Strategies

Good support doesn't have to be complicated. Most of what helps comes down to a few principles — predictability, clear communication, breaking things down, and working together — applied gently and consistently. Here are practical ideas you can pick and mix.

Core principles

Teaching & helping

At home & daily living

At school

In home education

At work (for older young people)

Wellbeing & mental health

💛 Wellbeing ideas here are general and supportive, not clinical advice. If a child or young person is really struggling, speak with your GP or a mental-health professional.

Therapy & clinical input

Clubs, sport & friendships

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Chapter 7 — Spotting the Signs & Getting Support

Every child develops differently, and the signs below are just things that might be worth exploring — not a checklist or a diagnosis. The most important message in this chapter is simple:

You do not need a diagnosis to start getting support. School SEN support and certain disability benefits are based on met need, not on a label or a waiting list.

Early years & primary (0–11)

Teens & young adults (12–25)

Adults (26+)

⚙️A step-by-step route to support

Gather evidence → first appointment → assessment pathway → support.

  1. Gather your evidence. Keep a short private log for 2–3 weeks: specific examples of sensory overload, communication barriers or organisation struggles. Collect any notes from teachers, employers or family.
  2. Book the first meeting. For a child in school, ask the SENCo for a meeting, share your log, and request that the school starts SEN Support (the assess–plan–do–review cycle). For an adult (or via health), see your GP, share a summary, and clearly ask for a referral for a specialist assessment because it's affecting daily life and wellbeing.
  3. Handle the waiting list. NHS waits for neurodevelopmental assessments can be long. In England, ask your GP about NHS "Right to Choose", which can let you pick an alternative NHS-funded provider and reduce the wait.
  4. Start support now. Remember you don't have to wait for a diagnosis — press ahead with SEN Support and any benefits based on need.
⚠️ General information for parents, not medical or legal advice. Signs vary hugely between individuals, and only a qualified professional can diagnose. Reflects arrangements in England; check current NHS and local guidance.
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Chapter 8 — Funding, Grants & Local Support

Support can be expensive — but there's more help available than many families realise. The main thing to remember: most of these are based on your child's needs, not on having a diagnosis. Below is a plain-English map of the main options.

Benefits (based on need)

Disability Living Allowance (DLA)Under 16
The main benefit for children needing extra care or help getting around. It's tax-free and not means-tested, and can act as a gateway to other help.
Personal Independence Payment (PIP)16+
Replaces DLA at 16. Focuses on the impact on daily living and independence.
Disabled Students' Allowance (DSA)University
Funds specialist equipment, software and mentors for students in higher education.
Access to WorkEmployment
A government grant for workplace adaptations, assistive software or a job coach (gov.uk/access-to-work).
Universal Credit (LCWRA element)Adults
Extra support where a condition severely limits the ability to work.

Through your local authority

Personal budgets & direct payments
If your child has an EHC Plan (or a social care assessment), you can ask to receive some funding as a direct payment, so you can arrange and buy your own therapies or support (see Chapter 3, Section J).
Disabled Facilities Grants
Council funding towards essential home adaptations — for example a low-sensory safe space or a ramp.
EHCP / high-needs funding
Funding attached to the support in a child's EHC Plan, passed to the school or provision to pay for it.

Charitable grants

Family Fund
Grants for lower-income families raising a disabled or seriously ill child — often for sensory toys, tablets/computers, furniture and family breaks.
Glasspool Charity & Family Action
Small, one-off welfare grants towards essential household items, educational equipment or short-term crises.

Local networks & your Local Offer

Every local authority publishes a Local Offer listing services for children with SEN and disabilities in the area (see Chapter 1). Because Warlingham sits right on the Surrey–Croydon border, families here can often draw on both the Surrey and Croydon Local Offers.

Local support usually includes parent-carer forums, SEND youth groups and social clubs, "buddy" and social-companion schemes, and carers' drop-ins. These are the single most valuable source of on-the-ground tips and emotional support.

⚠️ Benefit rules, grants and local groups change often, and eligibility varies. Always check current details and eligibility before relying on any of the above — search your council's Local Offer, or ask PawSteps to help you find what's available near you.
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Chapter 9 — EOTAS

EOTAS stands for Education Otherwise Than At School. It's a legal arrangement where a child keeps their EHC Plan but is educated through a tailored package outside a school building, funded by the local authority.

⚠️ General information for parents, not legal advice. Reflects the law and guidance for England; check the current version. For personalised support, PawSteps is here to help.
1What is EOTAS — and how is it different from home education?

EOTAS is not the same as elective home education. With elective home education, you choose to take responsibility for your child's learning and generally fund it yourself. With EOTAS, the local authority agrees that a mainstream or special school building would be inappropriate — often because of severe medical needs, significant school-related trauma, or profound sensory overwhelm — and it must arrange and fund an alternative package.

The law — CFA, Section 61A local authority may arrange for any special educational provision it has decided to make to be made otherwise than in a school or other institution, where it is satisfied that it would be inappropriate for the provision to be made in a school.
2How does it work in the EHC Plan?

Under an EOTAS package, the child keeps their EHC Plan, but no school is named in Section I — instead Section I states "EOTAS". The support the child needs is set out in Section F, and the local authority must arrange and fund it.

3What can an EOTAS package pay for?

Because the whole package is built around the individual child, it can be very flexible. Examples include:

  • Private, professional tutors delivering learning at home or in the community.
  • Specialist online schooling platforms.
  • Therapies such as Occupational Therapy, Speech & Language Therapy, or animal-assisted / therapeutic-riding sessions (see Chapter 10).
  • Memberships to sports centres or clubs to build social interaction and confidence.
4How is it funded and delivered?

The local authority can pay providers directly from its central SEN budget, or transfer funds to you through a Section J personal budget / direct payment so you can arrange and book the support yourself (see Chapter 3, Section J, and Chapter 8).

5Animal-assisted therapy as a "low-demand bridge"

For a child with severe school trauma, very high anxiety or burnout, sitting with a home tutor straight away is often impossible. Gentle, child-led animal-assisted sessions can act as a low-demand bridge — a way to re-learn how to engage, follow simple routines and regulate the nervous system before more formal learning restarts.

This kind of provision — for example at Pets on the Green in Warlingham — can be built into an EOTAS package or funded via a Section J personal budget. Chapter 10 explains how to word it so it counts as educational provision.

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Chapter 10 — Therapies in an EHCP

Getting the right therapy funded often comes down to where it's written in the EHC Plan. Therapies are generally funded by the Local Authority education budget (Section F) or the NHS / Integrated Care Board (Section G).

⚖️ The key principle: if a therapy helps a child access their education or learning, it should be treated as educational provision and written into Section F — which means the local authority is responsible for funding and arranging it.
⚠️ General information for parents, not legal advice. Reflects the law and guidance for England; how a therapy is classified depends on the individual child. For personalised support, PawSteps is here to help.
1Speech & Language Therapy (SLT)Usually Section F

Targets understanding language, expressing language (including communication boards / AAC), and social communication. Because speech and communication are so central to learning, SLT is almost always treated as educational provision in Section F — the LA funds the therapist to work with the child, and to train staff.

2Occupational Therapy (OT) & Sensory IntegrationUsually Section F

Targets fine motor skills (handwriting, scissors), gross motor skills (balance, coordination), executive functioning, and sensory processing. If a child can't sit at a desk, hold a pen, or stay in a classroom because of sensory overload, OT is needed to access education — so it belongs in Section F.

3Physiotherapy (PT)F or G

Targets mobility, muscle tone and physical access. If it's purely medical rehabilitation it sits in Section G (NHS). If it's needed so the child can take part in PE or move safely around school, it should be written into Section F.

4Psychological & mental-health therapiesOften Section G

Neuro-affirming CBT (adapted so it doesn't encourage masking), play therapy and creative-arts therapies. Usually funded under Section G (NHS / CAMHS) where treating a diagnosed condition — but can move into Section F where, for example, school anxiety is causing complete school refusal.

5Animal-assisted & hydrotherapyOften Section J / EOTAS

Animal-assisted interventions (therapeutic riding / hippotherapy, equine-assisted learning, therapy dogs) are frequently funded through a Section J personal budget, or written directly into an EOTAS package, as a way to re-engage a young person who has experienced severe school trauma. Hydrotherapy sits in Section G if via an NHS pool, or Section F if part of a special school's curriculum. (See the feature below.)

⚠️ The legal trap: "universal" vs "targeted" vs "specialist"

Local authorities sometimes use vague wording to keep the level (and cost) of support low. Watch for these three tiers:

🏆 The golden rule for Section F: make the wording completely specific. Reject vague phrases like "would benefit from regular sensory input" or "as and when required". It should say who delivers it, how often, and for how long.

Animal-assisted therapy & Section F

Animal-Assisted Therapy (AAT) and Animal-Assisted Interventions (AAI) can be funded through Section F, an EOTAS package, or an Alternative Provision framework. The key is to show the animal interaction isn't just a hobby, but an educational tool the child needs in order to learn.

The educational link: argue that the sessions directly build educational and developmental skills — reducing anxiety so the child is ready to learn, building emotional regulation, improving communication, and developing executive-function skills like sequencing and responsibility through structured animal-care routines.

Example of specific wording (adapt to the child):

"The child will attend 1-to-1 Animal-Assisted Intervention sessions at an approved specialist provider for [X] hours per week, delivered by a certified AAT practitioner, to develop emotional self-regulation and readiness to engage with learning."

Featured provider: Pets on the Green

A specialist SEND animal-assisted therapy provision in Warlingham (on the Surrey–Croydon border), led by qualified SEND specialist and certified AAT practitioner Ciera O'Rourke.

  • Approved provider working with local council SEND teams (Surrey & Croydon) for commissioned, outcome-focused programmes.
  • A low-demand bridge for children with school trauma or burnout — re-learning to engage and regulate alongside calm, temperament-assessed animals (including sugar gliders, hedgehogs and reptiles).
  • A purpose-built sensory den for decompression — starlight ceiling, bubble walls and a vestibular regulation chair.
  • Trained & safe: practitioners hold animal-care welfare qualifications alongside safeguarding, autism and positive-behaviour training; sessions move at a child-led pace.
  • Flexible pathways: curriculum-linked learning, structured AAI programmes, and reduced rates for SEND families visiting privately.

Fundable via Section F, an EOTAS package, or a Section J personal budget. Find out more at petsonthegreen.com.

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Chapter 11 — Understanding Neurodiversity

Understanding how a neurodivergent brain works — and the language around it — makes you a calmer, more confident advocate. This chapter is a friendly overview, not a diagnostic tool.

The words, and why they matter

Neurodiversity — a fact about all of humanity: every brain is wired a little differently. A single person can't be "neurodiverse" (just as one person can't be a "diverse group").
Neurodivergent (ND) — an individual whose brain works, processes or learns differently from what society treats as "typical" (for example autistic people, ADHDers and dyslexic people).
Neurotypical (NT) — an individual whose processing broadly matches the dominant societal standard.
The social model of disability — the idea that a person is disabled less by their condition and more by a world that doesn't accommodate their sensory, social and processing differences.

The main forms of neurodivergence

Rarely "pure" — most people have a "spiky profile" (brilliant at some things, real difficulty with others), and conditions often overlap.

Hidden profiles: PDA, masking & burnout

PDA (Pathological Demand Avoidance / a Pervasive Drive for Autonomy) — a nervous-system response where everyday requests can feel like a threat. Rewards, punishments and strict boundaries tend to backfire; a low-demand, collaborative, trust-based approach works far better.
Masking / camouflaging — suppressing natural traits (forcing eye contact, scripting conversations, hiding stims) to appear neurotypical. It takes enormous energy and is a major driver of anxiety, low mood and loss of identity.
Autistic / ADHD burnout — total physical, mental and emotional collapse from long-term masking, sensory overload and an unaccommodating world. Signs include losing skills (even speech), heightened sensory sensitivity and withdrawal. Recovery needs real rest and reduced demands, not standard "push through" advice.

Sensory processing: eight senses, not five

Each system can be over-responsive (hypersensitive) or under-responsive (hyposensitive):

Executive function & RSD

Executive dysfunction — difficulty with starting tasks (even wanted ones — not laziness), working memory (forgetting a just-given instruction), and time blindness (time feels like only "now" or "not now").
Rejection Sensitive Dysphoria (RSD) — intense emotional pain from real or perceived rejection, criticism or failure; closely linked with ADHD.

Communication — a different framework

Body & brain: common overlaps

Neurodivergence is a whole-body experience, and some physical conditions overlap often:

💛 These overlaps are general information, not a diagnosis. Always speak to a GP or specialist about physical health concerns.

The everyday ND toolkit

⚖️Neurodivergence & the law

Many neurodivergent people meet the Equality Act 2010 definition of disability, which brings real protections — including the duty on schools, employers and services to make reasonable adjustments (see Chapters 1 & 6). Examples: ear defenders, quiet spaces, written instructions, flexible timings, or a practical task instead of a standard interview.

Quick action checklist

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Chapter 12 — Meltdowns & Emotional Regulation

A meltdown is not naughty behaviour or a tantrum — it's an involuntary response to being completely overwhelmed, when a child temporarily loses control because their nervous system is in overload. It can show as shouting, crying, kicking or lashing out, or as a quiet shutdown — withdrawing, going still, or being unable to speak. Both are signs of distress, usually after stress has built up over time.

💚 The most helpful mindset: your child isn't giving you a hard time — they're having a hard time. Your calm is the most powerful tool you have.

In the moment — helping them through it

⚠️The "rumble stage" — catching it early

Many children show signs of distress before a full meltdown. Spotting these early can sometimes head it off:

At this stage, gentle distraction, moving to a calmer space, offering a fiddle toy or music, and removing a trigger can all help — while you stay calm yourself.

Afterwards — recovery

Preventing future meltdowns

🐾 Gentle, low-demand animal-assisted sessions (see Chapter 10) can be a lovely way to practise regulation in a calm environment — building the skills that help prevent meltdowns.

Common triggers

Sensory: noise, bright light, textures or crowds. A low-arousal environment, ear defenders or sunglasses can help.
Change of routine: an unexpected change can feel very distressing. Use visual supports to explain the change and reassure that the rest of the day stays the same.
Anxiety: build in relaxation and have a plan ready (a calming playlist, a stress ball) for situations you know are hard.
Communication: not being able to express a need can boil over. Visual supports, PECS, short clear sentences and giving processing time all reduce frustration.

"After-school restraint collapse"

If your child holds it together all day at school and then melts down the moment they get home, that's a recognised pattern sometimes called after-school restraint collapse. All day they've masked, followed rules and coped with sensory demands — home is the one place safe enough to finally release it. It's a sign of trust, not bad behaviour. A soft landing helps:

Looking after yourself

Supporting a child through meltdowns is draining, and other people's reactions can leave you feeling judged. Your wellbeing matters too — rest where you can, make time for things you enjoy, be kind to yourself, and lean on people you trust. You can only pour from a full cup.

⚠️ General information for parents, not medical advice. If meltdowns are frequent and hard to manage, or you're worried about your child's safety or mental health, speak to your GP. In a crisis, contact your GP, NHS 111, or emergency services. For neurodiversity-affirming guidance, the National Autistic Society's meltdown resources are a helpful further read.
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Chapter 13 — For You: Looking After the Parent or Carer

It is not your fault

If a quiet part of you wonders whether you caused this — you didn't. SEN, neurodivergence and developmental differences come from a complex mix of genetics, biology and natural variation in how a brain develops. Conditions like autism, ADHD and dyslexia are largely inherited and neurological.

💛 Put the guilt down. It isn't helping your child, and it isn't true.

It's okay to grieve

Many parents quietly grieve the future they had pictured, even while loving the child in front of them fiercely. This has names — ambiguous loss and non-finite grief — and it's a natural response, not a betrayal. You can move between sorrow, tiredness, resentment and deep tenderness all in one day; that's human.

Protecting yourself from burnout

Carer burnout is natural, not a personal failing — and looking after yourself is what gives you the energy to keep showing up. You don't need a week off to reset; small and steady wins.

Hope for the future

Future-planning worry is normal — but independence isn't all-or-nothing. Think of it as a spectrum shaped by your child's strengths and the right support around them. Many neurodivergent people go on to live full lives, build careers that suit how their brains work, and have relationships and families of their own.

🐾 And you don't have to figure it all out today. One next step is enough.

Where to turn

If you're worried about your child, the school SENCo and your GP can both help — and since 2024 schools in England can make direct referrals for autism and ADHD assessments, so it's worth starting with whoever knows your child best (see Chapter 7).

PawSteps is here for the practical side and the human side — understanding your rights, preparing for meetings, and simply being in your corner.

⚠️ General information and support, not medical advice. If you're struggling with your own mental health, please talk to your GP. If you or your child are in crisis, contact your GP, NHS 111, or the Samaritans on 116 123 (free, day or night).
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Chapter 14 — Everyday Challenges: School Refusal, Eating & Sleep

Some of the hardest parts of SEND life happen at home — getting out of the door, mealtimes and bedtime. These aren't "behaviour problems" to be won; they're usually anxiety, sensory needs or a nervous system under strain. Small, kind, consistent changes help far more than pressure.

School refusal (EBSA)

When a child can't face school, it's usually emotionally-based school avoidance (EBSA) — anxiety, not defiance. Pushing harder rarely works; a calm, team-based, gradual approach does.

📌 Attendance and anxiety can get tangled up with the school and local authority. Chapters 1 and 4 cover your rights (including education when a child can't attend), and PawSteps can help you approach the school.

Eating & food sensitivities

Sensory food refusal is real and often distressing. For some children it becomes ARFID (Avoidant/Restrictive Food Intake Disorder). The aim at home is to lower anxiety around food, not to force it.

⚠️ If your child's eating is severely restricted, causing weight loss, or you're worried about their health, speak to your GP. The UK eating-disorder charity Beat has helpful ARFID information and a helpline.

Sleep

Many neurodivergent children find sleep hard — from winding down to staying asleep. A predictable, sensory-friendly routine makes the biggest difference.

🐾 If your child is prescribed melatonin, that's a decision for your GP or paediatrician — always follow their guidance.
⚠️ General information and support for parents, not medical advice. For persistent difficulties with attendance, eating or sleep, speak to your GP or your child's health team. In a crisis, contact your GP, NHS 111, or the Samaritans on 116 123.
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Chapter 15 — Talking About the Diagnosis

A diagnosis is just a key that unlocks understanding and support — it doesn't change who your child is. How you talk about it shapes how everyone feels about it, so a warm, matter-of-fact, strengths-first tone goes a long way. What you share, and with whom, is entirely your choice.

💡 A helpful frame: brains are like operating systems — some run on one system, some on another. Neither is broken; they just work best with different tools.

Talking to your child

"Because your brain notices everything so deeply, big sounds or busy places can feel really overwhelming — and that makes complete sense."

‍‍Talking to their brothers & sisters

Talking to extended family

There's no perfect script, and you don't have to get it right first time — these are conversations you can return to and grow as your child does. Lead with warmth, and the rest follows. 🐾

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Chapter 16 — Jargon Buster & Ready-to-Send Templates

You're exhausted, and the SEND world is full of acronyms and forms. This chapter is here to make things quicker: tap a term to see what it means, and copy a ready-made email when you need to say something and can't find the words.

Jargon buster

✉️ Ready-to-send templates

Copy one, swap the [bracketed bits] for your details, and send. Keeping things in writing gives you a dated record.

⚠️ These templates are a helpful starting point, not legal advice. Adjust them to your situation, and keep copies of everything you send and receive.
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Chapter 17 — Exclusions & Being Sent Home

Being asked to keep your child home, or collect them early "to calm down", is one of the most stressful things a family can face — and it's often not done lawfully. Knowing the rules helps you push back calmly and effectively.

⚠️ General information for parents, not legal advice. Reflects the law and statutory guidance for England; check the current version. For personalised support, PawSteps is here to help.
1What counts as an exclusion or suspension?

Schools can suspend (fixed-term) or permanently exclude a pupil, but only the head teacher can decide it, only for disciplinary reasons, and it must be lawful, reasonable and fair — with a proper process and your right to make representations to the governing board.

The key point: any time your child is sent home or prevented from attending for behaviour reasons, it is a suspension or exclusion and must be formally recorded as one — with the reason and length given to you in writing.

2"Informal" exclusions are unlawful

If it isn't recorded, it's unlawful.

Schools sometimes ask you to collect your child early, keep them home for a "cooling-off" period, or say they "can't cope today". If this is happening because of behaviour and it isn't being recorded as a suspension, it's an unlawful ("informal" or "unofficial") exclusion. The same applies to a part-time timetable used to manage behaviour rather than as a short, agreed, reviewed step (see Chapter 1, Q14).

3Exclusions and disability discrimination

Under the Equality Act 2010, schools must make reasonable adjustments so a disabled child isn't put at a substantial disadvantage (see Chapter 1, Q16). Punishing or excluding a child for behaviour that is linked to their disability — without having made those adjustments — may be unlawful disability discrimination.

Your rightA claim of disability discrimination by a school can be made to the SEND First-tier Tribunal (generally within six months of the act complained of).
4What to do
  1. Document everything. Keep a dated log of every time your child is sent home, collected early or isolated, with the reason given, and save all emails.
  2. Ask for it in writing. If you're asked to collect your child, ask the school to confirm in writing whether it is being recorded as a suspension, and why.
  3. Check the adjustments. Ask what reasonable adjustments are in place for the behaviour they're concerned about.
  4. Escalate. Raise it with the SENCo and head teacher, then the governing board, using the school's complaints procedure if needed.
  5. Challenge if needed. You can make representations about a suspension/exclusion, and consider a disability-discrimination claim to the Tribunal (Chapter 4).

PawSteps can help you word the emails and work out your next step — you don't have to face this alone.